
Blog Post #12
By: Lisa H.
We spent almost 3 months of our lives on a sort of hold just 2 years
ago. Having your lives changed in a mere instant is life altering. Not
only did we have our lives on hold as we waited with baited breath to
find out what was left of our lives, as we knew it, we’re still
adjusting. I sometimes feel like the last 2 years of my life has been
nothing but adjustment. By the time I began to adjust, somewhat, to
Brian’s injury, we had Jaemin coming home unexpectedly. I’m finally
adjusting to that, 9 months later, but that’s another discussion.
So, I thought I would share my Caring Bridge site from the days of
Brian’s accident. This is start to finish, the journal I wrote in,
online, to keep family and friends up-to-date of what was going on, so
they could continue to pray for us. This journal also served as my
nightly lifeline after my nightly call to Brian, who was an hour away
from us. During the weeks he was in the hospital and rehab I had no
idea what the rest of my life was going to be like. In fact, the 1st
week, especially, I had many, many thoughts of what it would be life if
Brian was permanently paralyzed from the neck down and what my life as
a caregiver to my husband was going to be like. To say the least it
scared the heck out of me. It was so terribly hard on the kids too.
They were not allowed in ICU, so they could not see there dad for a
week. The last time they saw him was getting loaded into an ambulance.
They barely even had mom. For that first few days I had to be with him, so grandma and grandpa stepped in. I was able to make
videos of them talking to him for him to see and he made a very short
one when he had the energy for them. I had very serious, open,
discussions with them every night I came home. We spent every second
together.
And to catch you up on where we are today, I’ll give you the summarized
version. Basically, Brian walks. It’s not pretty or agile. He can no
longer play sports, but he can work in the construction field again,
which is better than I can probably do. This accident date was the last
time he played sports, and probably forever. He has brown-sequard and
central cord syndrome. His right side is a little slower and his left
side is pretty much normal range of motion. He cannot feel temperature
sensation as well with his left as he can his right. But, we do have a
new version of our lives back. We are still adjusting to that new life
because it is still changing as time goes on. So everyday can be a new
day.
Enjoy the journal. It begins about 1 week after his accident, right as
he was finally moved out of the intensive care unit. The accident was
on January 14, 2008. It has not been altered. I’m leaving it exactly as
it was because I do reflect on it from time to time as my life jacket
in the water during that time.
**
"Welcome to our Caring Bridge site. It has been created to keep
friends and family updated about our Brian. This week has just been the
week from %@^^. We’re slowly getting through everything, but it’s
difficult. Brian was playing basketball one week ago, as he has for the
past 15 years or so, mos Monday nights. He got his legs tangled with
another player when he went in for a foul and hit the wall (there was
concrete down there and no pads). He was life flighted from there about
1/2 hour later and arrived at the hospital within 15 minutes of lift
off. Upon arrival to the hospital, we found he had crushed his C5
vertebrae and fractured his C6 vertebrae. He was supposed to have
surgery the next evening because his improvement had plateaued, but he
was bumped due to emergencies. In the mean time he, very slightly,
improved and the neurologist decided to wait until Friday instead. So
for 3 days Brian laid flat on his back letting the trauma to his cord heal a bit and wait for surgery. His
surgery went off great on Friday. He now has C4, 5 and 6 fused
together. The surgeon, at this point, is thinking he won’t need a
second surgery for that fractured vertebrae, but they’ll do another
xray in a couple of weeks to make sure the fusion doesn’t slip. So
we’re holding our breath. Up until late yesterday, the movement he’s
had has been; full usage of his left leg, his shoulders, elbows and wrists. Pray
for us all as we go through this and pray for complete healing of my
husband and the father of our four children. We all desperately want
him back home with us and miss him terribly. Lisa
TUESDAY, JANUARY 22, 2008 10:08 PM, CST
Brian’s right leg began moving yesterday and a little more today. Still
no control over his foot or toes on that side, but his knee bends and
with a lot of concentration he can move his leg over a little. Still no
improvement on his fingers, although he can squeeze just a tiny bit on
his left and can now pick up a large roll of gauze. PT and OT came in
today finally, since he didn’t get to go to rehab as scheduled and
worked him over a bit. He sat up for 25 minutes, which they say is
outstanding. They seemed to be very impressed by both what he can do
and his determination to do more. I pray that the muscle spasms,
tingling, etc. in his non-moving limbs are a good sign as everyone says
they are. By the grace of God he never lost feeling, but does feel a
little numb in some fingers and toes (furthest extremeties). Everyone
says all of this is to be expected. We’re trying to remain optimistic that he’ll be home soon and be able to settle into our lives once again. Please
continue to pray hard for him as he goes through this. He will have
good times and bad as have I. They’ve told us this is normal and we
need to lean on others when it settles in on us. I just want my husband
home, but know this rehab is his best chance at regaining functions.
Now if insurance would just review the stinking request so he can leave
the hospital for the rehab hospital, life would be good. Lisa
WEDNESDAY, JANUARY 23, 2008 09:07 PM, CST
We got to talk to him tonight. My dad was there and held the phone for
him. He said he’s all settled into the center and we should find out
next week what the game plan is. Tomorrow is more evaluations and tests
and Friday he begins his real work. I asked if there was any
improvement and he said he is moving his right leg with a little more
strength, but still has no strength to pull his right foot up if it drops. He
got to talk to the kids tonight and it does all of us good for that.
Chels actually had a little bit of a conversation with him. They did
their usual animal sounds together. It’s starting to hit her harder.
The rest of us are just trying to pass the days until we can see him. I
get to see him alone Friday….at least that’s the plan. So, if you’re
reading this and planned to go up Friday night, please don’t. I just
want to sit with him alone. The kids will come up sometime this
weekend. I’m not sure which day, but they will spend a good amount of time with their dad as they both need. They
did tell him today he would walk again. No one’s sure how well, but he
will walk. As usual, they say the hands and fingers are the last to
come along, so we must be patient, but it IS hard!For now, we just wait
for the day when we can all be together permanently and not a
disconnected family. Please continue to pray for his progress. We live for these little changes. Lisa
FRIDAY, JANUARY 25, 2008 10:36 PM, CST
As you can imagine the last couple of days have been terribly busy and
I try to spend them with the kids and on the phone with Brian. We’re
making the most out of little time. As
of yesterday, he had a full evaluation and they let him walk with a
walker. He said it was really hard and he was mostly stumbling through,
but it’s progress nonetheless. His right leg’s muscles are extremely
week so they don’t support him very well yet. I got to see him tonight
and he looks really good. It’s nice to see him not hooked up to things
anymore and sitting up. He’s in a manual wheelchair, which is great.
They’re giving him a good work out for him and, in my opinion, a manual
means he has a ton of potential or they wouldn’t be doing it. He said
he’s pretty darn sore tonight. All of his muscles hurt and he
definitely feels them. We’ve probably got a long wait for the nerves to
his fingers and toes (on his right foot) to grow back and/or heal. I
think he’s learning way more about the body than he ever thought
he’d have to know. He was able to give me a hug as soon as I came in
tonight and that felt really good. We really don’t do anything other
than hold hands and talk, but it so nice to do that. I know he’s
hurting in so many ways right now. I know he’s physically hurting and I
know he misses us and I know he worries because he knows I’m sad
without him. I miss him terribly and it doesn’t seem to get easier.
I’m
thankful I have him coming back to me as so many people don’t in worse
situations, but at the time it doesn’t feel so good. He’s worried
’cause he knows I can’t eat right now and I’m trying my best, but my
nerves are a mess. I try to be strong, but I’m completely exhausted!
It’s not easy, even with the help from grandparents, getting kids fed,
bathed, house somewhat kept up, bills paid, go to work and try to get
time to talk to your husband. I know, again, that there are others who have it worse and I know it’s for the most
part temporary, but it’s still my own reality that I have to deal with
for now.I had to tell him tonight that I can’t come up alone at night
anymore. I want to spend time alone with him, but the drive tonight was
hard. I was so tired after work, it was a miracle I made it there and
then leaving is hard and even leaving at a decent time, you’re just too
tired to drive for an hour. I’ll have to go up with others so I can see
him a couple of times a week. I don’t want the weekends with the kids
to be it. But,
in case anyone was wondering, this is where we’re at right now. Thank
you all for your prayers and the unbelievable help we’ve been getting.
All of the little things are meaning so much to both Brian and I so we
can relieve some stress that we both very much feel. Please keep the
prayers coming! Lisa
SATURDAY, JANUARY 26, 2008 09:21 PM, CST
Mom and I brought the kids to see Brian today. They had a hard time
sitting around for 4 hours, but I wanted to really let them spend time
together. The girls got to sit with him for a bit. I think it did Kae a
lot of good. We got to go to one of his therapy visits, which was nice
to see what he has to do, but this was a very light one since it was
the weekend. I think his right leg is getting very strong, but he said
it feels terribly week and definitely cannot support himself on it. I
had my leg next to his while he was in his chair and I started knocking
my knee against him and he started knocking me back pretty hard. I’ve
never seen anyone with a more positive attitude or someone who tries
harder to get better. I always knew he was strong. I got to lay in his
bed with him for a little bit today and for just a bit I forgot what
was going on and everything felt okay. Then when you go home you
realize that it’s still the way it is and it does make you a bit sad. After being away from the house for almost two weeks, I
worked tonight to get it the way I like it. It makes me feel better.
Laundry’s actually almost caught up. Mom has done some laundry while I
was gone or the kids wouldn’t have a stitch to wear. I finally set foot
in a grocery store for the first time in two weeks. The boys and I just
picked up some quick, easy, healthy snacks that won’t go bad. It’s
amazing now that Brian’s not here to eat and I’m not eating much how
quickly things go bad. Thanks again to everyone’s support. The cards,
emails, etc. have been very uplifting. I haven’t had time to get Brian
to a computer to let him read, but I hope to this week and I think
he’ll be amazed! We appreciate everyone we’ve been able to lean on
during this time. We wouldn’t be able to get through it all without you
and we love you all for it. Keep up the prayers. They seem to be slowly working and we’ll take all we can get. Lisa
MONDAY, JANUARY 28, 2008 08:35 PM, CST
I will be seeing Brian tomorrow evening (thanks Mic for the ride). I
talked to him for a bit today and this evening and he’s doing really
well. He made some pretty darn good progress today and though we know
progress of this magnitude won’t be a constant we’re extremely thankful
for it. He
said that when he was walking with the walker at therapy his PT asked
him if he was really using the walker. They weren’t so sure he was so
she put a safety belt on him and he walked on his own. He said a couple
of times it was iffy, but he thinks he walked about 60 feet. He
promised he’d count the tiles for me tomorrow. His right knee is
hyperextending since he doesn’t have the greatest muscle control yet
and his foot still drags, but it’s slowly getting better. He said he’s
even got a little more foot and toe movement on his right today. Brian also began getting out of his wheelchair to a standing position on his own, getting in and out of the simulated apartment bed and even on and off the toilet. Soon, he might
get to try all of it for real, which is going to be awesome. He said
his fingers on his left hand are moving a little more. He has enough
grasp to hold a fork without the handstrap. To honor his wife’s wishes
he will use the handstrap on his right hand tomorrow to begin trying
that. However, they said today he has no triceps on his right side and
they can’t feel any muscle movement for what should be pulling his
fingers. We’re still hoping something will come back with time, but
there’s no given. For
his injury, at this level, he has done outstanding. We’re very
fortunate for what he has gotten back and as quickly as it has come
back. A lot of people who get this sort of movement back takes months
to do so….not days. I found out his ASIA score was D, which is
unbelievable. That puts him at better odds, which may explain his
recovery so far. Please continue to pray as we know they’re
working and we’re living for them. His little updates to me (as little
as they sometimes are) is what makes my day. When I talk to him for a
few minutes my worries don’t feel like they’re quite so overwhelming.
I’d like him back, but I know this progress there is going to continue
and we have to do without him a bit longer for him. Pray hard….storm
the Heavens…..He’ll listen. Lisa
TUESDAY, JANUARY 29, 2008 09:49 PM, CST
I have nothing to update as far as Brian’s progress. He’s pretty much
the same as yesterday, but I got to see it. We’re keeping up the hope
that someday most of his function will return, but only God knows and
we have to trust Him to take care of us. The
reason I logged in tonight is to post our little financial miracle.
This may not sound like a lot, but it was too ironic not to post.
Brian’s car had an antifreeze leak and the week he got hurt was when it
was supposed to get fixed. Jay brought the car there for us and we
found out it was worse than we thought. The radiator also had a leak.
Our mechanic called me today to let me know the car was ready and it
was $599.98. Today, and I kid you not, various people gave us cash to
help out totalling $600 even. This was just a little reminder to me
that He is watching us and will take care of us. I just have to keep my
faith even as hard as it’s being tested. Keep praying…..He’s listening. Lisa
THURSDAY, JANUARY 31, 2008 08:08 PM, CST
Nothing major to update. Brian still says he’s getting stronger
everyday. He did get some pool therapy yesterday and he said that felt
really good and gave his muscles a good burn. Everything from here out
is such a wait and see. Wait and see what comes back. Wait and see how
strong. We’re all trying to wait patiently. Things
on the homefront have been good. We’re getting into a new routine and
everyone’s been great about bringing food. I think I have food for the
next few days which makes our nights so much easier. The kids are doing
good and of course, we have Jay and everyone else to help out.
Hopefully the next 3 weeks will go quickly and be very productive for
Brian.I taped Oprah today and it gives a lot of hope to hear Kevin
Everett’s story. I know his isn’t exactly the same in that they
explained his vertebrae were dislocated and Brian’s were shattered, but
Kevin’s were higher (C3/C4) and trauma to the cord is trauma….overall. I hope Brian comes out as functional as Kevin. I was really surprised to
see the amount of movement Kevin had. Of course, being a football
player probably gave him a good up on getting great therapy. Hopefully,
the next months of Brian’s will be as good. Keep praying.Lisa
SATURDAY, FEBRUARY 02, 2008 06:01 PM, CST
We got to go see Brian today. His fingers on his left hand were
amazing. I have to admit I was a little disappointed Tuesday. I don’t
know what I was thinking, but I guess when he said they moved I
expected a lot more than was really humanly possible. I just wanted it
so bad. But, today, they really moved. He could move them
individually!His right side (fingers and triceps) are still not
responding. They’re going to start trying FES this week and see if his
fingers will eventually respond. This electrical stimulation will send
a signal to his brain that there are still limbs there that need to
move. Sometimes this works and sometimes it doesn’t, but we’re
remaining hopeful. He looks good and was giving Megan a hard time, so
like she said, he’s back to normal. He’s having his annual Super Bowl
party tomorrow, just a little smaller and in the hospital. I’m not
going, but his buddies are and it will be nice for him. We’ve had some kinks at home as well. You know how it is….when it rains it pours. Our daycare
emailed to say she needs the kids picked up by 4:15 daily for awhile
and well, that just can’t happen unless I rely on other people daily
when I pay her daily for a ’til 5:00. Because of that the kids will be
going to Brian’s moms. She has agreed to take them and help us out. I
went back to our daycare to get our February check back (for the entire
month) and write a new check for two weeks notice and she said we owed
her two weeks vacation on top of two weeks notice for vacation she’s
never taken in two years. We’ve only been there for 18 1/2 months. Not
to mention I have taken off for her to be off. At least now, we know
where the kids will be daily and we have no worries. That in itself, is
worth a lot.
MONDAY, FEBRUARY 04, 2008 08:40 PM, CST
Still no changes as far as what’s moving, but he had his cath removed
today. Now, they’re really bladder and bowel training. He’s no longer
hooked up to anything, which is great for the chance to have
independence again. So far today, his nurse told me he’s done really,
really well! Three weeks on a cath is hard on the muscles in the body.
He said he asked the PT how far he walked today and she said about 1500
feet. That’s a long dang way. After he walked all that she put him on
the stair climber and he said it didn’t kick his butt this time, so
he’s obviously getting pretty strong. They did FES therapy on him
today. He said his muscles reacted in his fingers and triceps, so we
have to just wait and see. Hopefully, one day, they’ll come back, but
there’s no way to know. I’m bringing his disability continuation papers
up this week for the doc to fill out. That will keep that coming for a
bit longer….depending on whether the doc says he’s partially or fully disabled and for how long. We fully trust the
doctors there and they seem to know Brian’s potential, so we go with
it. In any case, he’ll be home soon and we can get on with phase 2 of
our lives with SCI. Lisa
WEDNESDAY, FEBRUARY 06, 2008 09:43 PM, CST
We had a family team meeting today. This included Brian and I, the
staff pyschologist, PT (the OT was sick), the attending and the
resident, as well as his primary rehab nurse and case manager. We got
to ask any questions we had and they told us what they thought so far.
His injury is just over 3 weeks old and every one of them are amazed at
the progress that has already been made. The doctor said it helps a
little that the impace was running (basketball) and not thrown, such as
the speed from a car. But, the trauma can be similar. He’s coming out
at a fairly quick speed as far as gains. The doctor also told us that
100% recovery is not a reality with SCI, but he feels 90-95 is well
within realm of reason for Brian. He felt he was already at 70-75% with
still 2 1/2 weeks in therapy to go. He will NOT have to return
inpatient. He can continue everything at home because he’s doing so
well. He just has to return for some follow up visits. We don’t know the meds or DME products he’ll need yet. They have an idea, but
until closer to discharge they have a lot of possible changes. The PT
seems to think he’ll need very little as his endurance is very high.
Balance needs a little work, but she said it’s improved drastically in
the last week. They’re already testing him on uneven walking surfaces
and stairs. He rides the stationary 3 miles and still uses the stair
climber and other therapies after that. That’s more than I could do. They
told us it’s going to be another adjustment when he arrives home
because this has been the biggest thing to happen in our lives, but
they obviously don’t know us very well. I don’t doubt things will
change, but we will make things work. Not to mention the support we
have. I doubt everyone has the support we’ve been given over the weeks.
Now for the big news. Don’t get your hopes up too far because it’s
really early and weak and there’s just no way to know if it will
progress, but we think there’s a good possibility. He moved his right
fingers last night and more today. I got to see them and his thumb took
a lot, but it moved quite a bit. His other fingers are starting to curl
when he wants them to a little as well. They thought today his tricep
might have moved, but they’re not 100% sure on that one. It could have
been his shoulder muscles as they’re extremely strong, but they think
it was his tricep waking up. This is big. He has almost every muscle
doing at least something and this is very early in the game, so this
gain is HUGE!He will have a lot of strengthening to do once he gets
home and I have no doubt he will work hard. Hopefully, he can even
start driving once his neck brace is removed….that’s what they’re
telling us at least. No plans for the future, just day by day. Lisa
WEDNESDAY, FEBRUARY 06, 2008 09:53 PM, CST
Oh, just so anyone who plans to visit knows. He won’t be there on the 16th. We’re taking him out for the day.
THURSDAY, FEBRUARY 07, 2008 07:08 PM, CST
Little miracles today. Nothing to do with Brian’s progress, but calls I
got that made us happy. The girl that normally cuts his hair, called to
see if she could cut it while he was in the hospital. She said she’d be
in the area anyways and has done this before. That’s great, ’cause he’s
late! I had to call Brian’s work to find out what insurance they were
going to have in March. The long of the short is that they were getting
ready to change companies in February, but due to the accident they
kept the coverage for another month to cover his inpatient rehab. We
knew this coverage was expensive for his employer so they were going to
go ahead and change in March so that’s what his outpatient therapy,
etc. would fall under. I called today to get his outpatient stuff going
and they are keeping the same insurance for the rest of the year to
help us out. This means he’s met his deductible already. Luckily, me
and the kids are on mine, so he just has an indivdual deductible, so this is BIG. This was such great
news to hear. They are really doing everything to take care of us and a
lot of employers would not do this. They, of course, were thrilled when
I updated them on his progress. Then,
last night I had mentioned to a guy he works with that we need to get
Brian a new lab pup for while he’s home for a couple of months to keep
him busy and it would be great training/bonding time for a new duck
dog. I said I’d been looking for a free one, but hadn’t seen one yet.
Chris asked what color and I said black, just like our older one. He
called today to tell me that when he walked into clock in there was an
email hanging up next to the time cards that said there was a 10 week
old black lab that needed a home ASAP or it would be put down. We’re
picking him up tomorrow! I hadn’t okayed it with Brian yet, but I
called tonight to make sure it was okay and he was thrilled! He’s been
wanting a new duck dog for awhile and he said even if he’s not
trainable he loves the idea of having a pup around while he’s home.
This will be good for all of us and I think the pup needed us as bad as
we needed him. So
that’s today’s update. A little different than the usual, but it’s
interesting to watch God’s work here. It started off so bad and we were
all so scared and it’s working things out in different ways. It always
has before, I don’t know why I worry sometimes, but I guess it’s human
to be scared. God is listening. Lisa
FRIDAY, FEBRUARY 08, 2008 09:28 PM, CST
Go to the photos and check out Brian’s therapy for when he gets home.
The close up isn’t a great picture, but he’s a great looking pup. He’s
gonna love this dog. Lisa
THURSDAY, FEBRUARY 14, 2008 10:29 PM, CST
We’re dwindling down on visits…YAY! Anita brought me up tonight, but
she didn’t lie about going to Sam’s (Mic). He’s getting really excited
about our day out this weekened. More excited about busting out next
week! He did squeeze my thumb with his right hand as I always have him
do…..I don’t let him squeeze with his left anymore ’cause it hurts like
you know what. I could actually feel the squeeze with his right this time. He
said they’re sure his tricep is starting to work. He can’t completely
keep his hand from hitting his head if he raises his arm, but he can
control it enough to slow it down. His hand doesn’t look as tired when
he opens and closes it repeatedly either. He even wrote a note to me on
my Valentine’s card with his left hand. It may have taken him awhile,
but it was pretty neat. It was nice to go up on Valentine’s Day. Thanks
so Anita for bringing me and Nancy for getting Brian some cards to pick
from for me. When it was time to go he walked me to the
lobby. Yep, that’s right, no chair. His PT said as long as he’s inside
and careful he can go on his own now. He’s got a pretty good gait. Only
if you watch real close can you tell that his right foot doesn’t flow
as fluidly as his left which is completely natural and when he tries to
hard he looks like he’s strutting. I’m still amazed as is everyone at
the hospital. They said very few people get these kinds of returns at
all, let alone in such a short period of time. He truly has gained so
much and has all the hope in the world for what we had to be back. We
just have a new found appreciation for life and are just thankful for
everything we do have. We are the luckiest people ever. Lisa
THURSDAY, FEBRUARY 21, 2008 09:23 PM, CST
This is it. Our last night without my husband and the kids’ dad. It was
nice having our nightly talk and not worrying about when we’ll talk
tomorrow. The weather will probably cause it to take me longer to get
to him, but he’s packed and ready to go. The kids are so ready to see
him home. No more small talking with him. I can just see him and get
tired of him like before. Send him on his way fishing….that’s as
sportsman as I’m gonna be letting him get for awhile. I think we have
everything as prepared as we can right now. Amy made us some soup and
Jay’s mom made us some lasagna, so we’re good with food for a bit and
Brian’s aching to get into the kitchen again. We have a hog in the
freezer now, so finally we have food again. I just have to stop
tomorrow and get him some night lights for the bathrooms, so there’s
not tripping around the house. I can’t think of what he called the
test, but he got a 55 out of 56. I think it means he’s basically staple to sit and stand/function on his own. He said the
nurse has all his paperwork ready to go, so hopefully as soon as I get
there….shortly after anyways, I can spring him. Thanks
for all the prayers we’ve gotten here from around the states. We’ve
truly appreciated them. Now just pray that I can get him home safely in
this nasty weather tomorrow. Lisa
THURSDAY, FEBRUARY 21, 2008 09:31 PM, CST
BTW, I just added a picture from the hospital….not rehab, so it’s about
1 month old. I’ll eventually get a new picture of him up and
about….even if it is with the neck brace still.
SATURDAY, FEBRUARY 23, 2008 03:30 AM, CST
We made it home safely. It took a little bit longer to drive since the
passing lane wasn’t cleared at all and then it started snowing again,
but it really wasn’t too bad……it wasn’t icing, right. We didn’t get
back to town until about 11:30, by the time he said good bye to all of
the staff and we got every bit of paperwork we needed to go on. When we
got back he wanted to go to work and say thank you for all they’d done
and that took a bit. We went to DMV and got a handicap tag for the bad
days. Then we went to Target to try to fill his scripts….oh my was that
a mistake. They’re usually super quick and we had to go there to get
him a yoga ball and weights anyways, so we thought it made
sense….wrong. They told us they were behind when we got there even
though the scripts had been there for over 2 hours. We went and picked
up the stuff we needed and came back and waited some more and finally
she says “oops….we ran out of labels”.
They had no idea when they would get the problem fixed and if you have
no labels they can send you home with a prescription. So we asked for
the scripts back and went to Gerbes. Brian waited in the car this time.
He was pretty tired. It only took 1/2 hour there to drop off and wait,
so that wasn’t near as bad as I thought they’d be. They’re usually
terribly busy. So we were able to get our groceries we absolutely
needed first. We
had so much stuff to put away when we got home. We weren’t done with
everything until 4:00. It just felt nice to get all of his stuff from
the hospital back in it’s place and begin settling in. We couldn’t even
get out of our driveway once we got home. It had snowed enough after I
left in the morning to make our driveway bad enough to need shoveling
to get out since it’s so steep. Not to worry….I just called Joe and he
picked the kids up and brought them to us. Thanks Joe! We had a nice
easy night. We put the lasagne that Mary made in the oven, cleaned
up and were able to lay around and enjoy the evening. No late phone
call to the hospital. That was so nice. It’s good to be home. We’ll see
what each new day brings. He’s still got quite a bit of work on that
right side.
Other than having quite a lot of function in his left leg
he has pretty typical Brown Sequard Syndrome. Hopefully the new hand
therapist he’ll get next week can help him out, but they don’t have FES
treatment, so he won’t have that advantage. The doctor also gave us
paperwork to read over about a drug in clinical trials, but I’m not
sure yet. We haven’t had time to read the info and when it’s still in
clinicals, they don’t know ALL the side effects yet and will those be
worse than the alternative of the function he doesn’t quite have.
That’s what the drug is meant to help with and he said it’s showing to
be pretty promising, but there’s always a trade off….almost always. They said it doesn’t matter if we wait and decide or do it now,
the results should still be the same, so we’ll probably wait and see
what comes back with a little more time. 5 weeks post-injury isn’t
long.
Most of what you’ll get back can still very easily happen for
another 2 months and then you can still get some more for another year.
We’ll probably see how we feel about the drug in 2 months or so and how
his finger function is. That’s really the only major things that’s left
as far as what the drug will help and he just got them back a little
over a week ago, so he can progress yet on his own. I’m not a big drug
person unless the alternative to not taking it is worse, but that may
not necessarily be the case for him since he’s doing so well. Also, I
know they say it’s good to have the spasms, but sometimes I wish he
were healed enough for them to go away. I hate watching him freeze up
everytime he gets up for the first time and watching his hand and leg and back on his right side just
stiffen up. I hate thinking that it might hurt at all. I know that’s
nothing considering, but I so badly want to see him better. Thanks
again for the prayers. We’re together again and the kids are thrilled!
Chels wouldn’t hardly let him go last night. It was great! BTW, I
thought this was kinda funny. You can never get your kids to do
anything for you and our 11 year old is no different, but he was so
anxious for dad to come home that when I got up yesterday morning at
6:30 he had already gotten up and salted our driveway so I could get
the van out. How good is that?! Lisa
SATURDAY, MARCH 01, 2008 09:36 AM, CST
Brian’s been home one week. We are starting our own routine. It’s so
nice to have another parent in the house again….and adult. He started
outpatient therapy this week and it should continue through March.
We’re not sure after that. He may be well enough to do exercises at
home. Hopefully, in the next couple of months he will return to work
part-time. He wants to badly, but he gets tired pretty quickly. He has
to build his stamina back up. That’s probably the hardest part right
now. On another good note, right before he came home his aunt and uncle
were nice enough to process a hog for us. We needed one pretty bad as
our freezer was empty! We’re still getting cards from folks which is so
nice. Even the kids’ school gave us a card and a gift card the other
night when I took Kae up there for kindergarten round up. We never in a
million years expected this, nor have we expected any of the extreme
kindness we’ve received over the past 2 months. We really are doing okay now and things will be okay. We know
that. We just have to adjust our lives to the event. Adjust to Brian
walking very slowly, not writing (very well anyways and slow), some
pain and spasms, etc. Things that do keep him from the life he had, but
we will adjust and have been. Hopefully, it will get much better as far
as his abilities, but you can never know an dwe’re taking what we’ve
got and thankful for it. Lisa
TUESDAY, MARCH 04, 2008 07:06 PM, CST
Brian had his follow up visit with the surgeon. It’s about 6 weeks or
so post surgery and about 7 weeks post accident. This is the first time
the surgeon has seen him in about a month. He was pretty darn impressed
to see this many returns in 7 weeks. We also asked if he could drive
and/or if he needed any sort of evaluation first, but he said he
definitely is fine to drive. So he drove us home today. That was “my”
little drivers test for him. He did fine, btw. Brian’s pretty excited
to be able to drive already. We were thinking closer to May. He
also got his neck brace off already. That one really surprised us. He
said he still has to be pretty careful and if his neck gets tired or
anything he needs it back on for a bit, so we’re keeping it around. He
can’t put his head too far down and isn’t supposed to make any sudden
side to side movements yet, but he can start building up the strength
in his neck muscles. Brian says he has a pencil neck now. This
is good to have another parent that can run some errands, of course he
has to abide my “my” rules for a bit. I’m a little over protective, I
know, but oh well. Lisa"
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